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I Like You When You:
* Recognize my denial, anger, and healthy and natural response to grief.
* Accept that my child's health care needs are only a part of my family's
priorities and that sometimes my family's needs and concerns may take
precedence.
* Value that I'm the expert on my child.
* Acknowledge that I am a competent partner in health care.
What I Need From You:
* Help me find the information I need to understand my child's condition.
My child's condition is not temporary. I'll be learning about it for a
lifetime.
* Do not withhold or omit any information concerning the severity or
extent of my child's condition. Also, do not hesitate to use medical terms
when necessary.
* Help me to understand the range of possibilities. Tell me the worst and
best possible prognosis.
* Acknowledge my sense of urgency by responding quickly to requests for
medical information, referrals, etc, so that appropriate services can
begin or continue.
* Remind me of my child's strengths from time to time.
* Collaborate with other professionals providing care for my child.
If it sometimes seems I expect you to be my social worker, psychiatrist,
and omnipotent seer of the future... well I do!
P.S. Thanks for being my competent partner in health care!
The American Academy of Pediatrics (AAP) believes that all infants,
children, adolescents, and young adults should have access to a "medical
home" that provides comprehensive, coordinated, and family-centered health
care.
This goal presents unique challenges for pediatricians offering primary
health care to children with special needs within this changing health
delivery system. To meet those challenges, the Medical Home Program for
Children with Special Needs identifies and promotes model strategies,
training, and technical assistance. By supporting physicians, and other
health care professionals, the Medical Home Program for Children With
Special Needs seeks to provide better health care for all children.
For more information on how the Medical Home Program for Children with
Special Needs can be a resource for you, or if you would like to be added
to the mailing list, contact call 800/433-9016, ext 7081, or send an
e-mail message to:
medical_home@aap.org.
Parent-professional collaboration is an essential component in the
provision of medical homes for children with special needs. This document
was brought to you by the American Academy of Pediatrics, Medical Home
Program for Children with Special Needs with funding provided by the
federal Maternal and Child Health Bureau.
This document is a reprint from materials provided by the Hawaii Medical
Association's former Medical Home Project.
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From the National Center of Medical Home
Initiatives for Children with Special Needs (National
Center). National Center materials are not copyright
protected and may be reproduced for educational,
noncommercial purposes. Please feel free to photocopy
and distribute widely with appropriate acknowledgment
of the source of the materials. |
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