Attention: Individuals and families with Usher Syndrome or combined hearing and vision loss.
We are conducting a study to find the genes responsible for Usher Syndrome (hearing loss and retinitis pigmentosa (vision loss)) in Ashkenazi Jews. If you or a member of your family are an Ashkenazi Jew or of Ashkenazic heritage and have Usher syndrome, or both hearing loss and vision loss that has no other known cause, you and your family member may be eligible to participate.
Participation may be as simple as a phone call and giving blood locally or may involve spending a few hours at Mount Sinai Hospital in New York for vision and hearing tests at no cost to you.
There may be no direct benefit to you as a participant other than the possible medical advances and greater understanding of Usher syndrome that may result if causative genes are found.
For more information please call Drs. Ness or Willner at 212-241-6947, contact them by mail at:
Judith Willner
Department of Human Genetics
Box 1497
Mount Sinai School of Medicine
One Gustave L. Levy Place
New York, NY 10029
or email Dr. Ness at mailto:nesss01@doc.mssm.edu
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