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 Sudden Hearing Loss (Page 3)
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| Author | Topic: Sudden Hearing Loss |
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Badger70 unregistered |
posted 07-01-2001 02:02 AM
Hello. I've had severe tinnitus for 11 years now, begining when I was 19. What can I tell you? It's bad! If I could be completely deaf and not have tinnitus I would opt for that. I've read about a procedure called and "eight nerve resection". This is where they cut/ remove the auditory nevre, leaving the patient deaf, but hopefully eliminating the tinntius. But, it dosen't work! In fact in about half of the cases the tinnitus became worse! So that procedure is NEVER done anymore. My advice, don't try an go it alone, talk to a psychologist who specialises in helping people with chronic conditions. But, I'd stay away from Xanax if someone suggests that. Don't Panic - Stick to Your Guns IP: Logged |
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the harpest unregistered |
posted 07-10-2001 03:12 AM
With all your stories out there, I felt prompted to share mine. When I was five years old, I was diagnosed with a moderate hearing loss in my right ear. This really did not impact my life, however. Then on May 11, 2000, (two weeks before my high school graduation) I woke up, completely deaf. The scariest day of my life. The key is, not to lose hope. Good doctors and high doses of Prednisone have made it possible for me to hear some aduible sounds out of my left ear with a hearing aid, my right ear, (although I do have a hearing aid) hears virtually static. I learned American sign language, and am currently persuing a degree in Education at an excellent university. Again, I say...do not lose hope. Keep your family involved, let them help you. Do whatever you feel is best for you, and dont ever let any one tell you that you can not accomplish your dream!! IP: Logged |
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ROCCO unregistered |
posted 07-11-2001 12:22 PM
Harpest: Hope....Never lose hope...I agree...But false hopes kill me. Doctors are full of false hopes. They haven't a clue to how this happens, and yet make attempts to appease your mind by popping pills and re-visiting them every month only to hear the same bullcrap. I'll give you hope !!! False hope !!! Only the man above can give me salvation!! He's the only hope I resort to resolve sudden hearing loss. Get used to it !!! False hopes are for the weak minded. IP: Logged |
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ROCCO unregistered |
posted 07-12-2001 10:04 AM
Harpest... And by the way, high doses of prednosine will eventually destroy you. Did you know that prednosine, one of the strongest steroids on the market, will..in time..destroy the bone marrow at the joints. I personally know someone that has osteporosis from taking prednisone for a long time. Prednisone is an addictive drug that can also cause emotional trauma, and if you do not ween off of this drug, it can cause brain disorder. Fact, you cannot just stop taking prednisone, you need to take little by little until the doctor thinks you've had enough!! Why? It can and will destroy you. Doctors are full of it, they prescribe this steroid, without mentioning the side affects. Go ahead and ask the so-called professionals for your own satisfaction. [This message has been edited by Admin5 (edited 07-12-2001).] IP: Logged |
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Paula Moderator |
posted 07-12-2001 10:22 AM
Rocoo: We are happy that HearingExchange provides a forum for you to air your frustrations with you hearing loss, however, we cannot allow you to be rude to our other members. Harpest is following the orders of her doctor and has had success. We appreciate that you are alerting her to possible side effects to this medication, but please do not use derogatory tones and phrases in your comments. We appreciate your cooperation. IP: Logged |
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ROCCO unregistered |
posted 07-12-2001 12:56 PM
My apologies for being derogatory. No intent was made directly, I hope my message(s) were not taken personally. However, I am trying to indicate that all is not as cracked up as it should be when dealing with tinnitus / hearing loss. I shoot from the hip, no flowers, no pretty pictures, just the facts. I live it everyday. IP: Logged |
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Paula Moderator |
posted 07-12-2001 02:09 PM
Thank you, Rocco. We appreciate your honesty and information. Paula IP: Logged |
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Mike Member |
posted 07-16-2001 12:53 AM
Rocco, My name is Mike and I was the person that started the Sudden Hearing Loss topis at this site. I appreciate your "from the hip" attitude. I have had problems with many in the "Hearing Field" in getting to the correct answers and trying to find someone to be proacitve in correcting my hearing loss. Too many people take things at face value and go with the flow only to be dissapointed in the end. Thanks for your honesty. It is people like youself that will force change in the search for answers. God Bless! IP: Logged |
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ROCCO unregistered |
posted 07-16-2001 02:40 PM
Mike, I appreciate your praise. We were dealt a bad hand, and in order to conquer this we need to be up front and candid regarding solutions. As I continue to research the medical world, I will continue to post my findings. I am actively engaging this disorder with several Doctors, and I will communicate their direction to this site. So far, "Clueless" best fits their response(s). Fact: Did you know that it takes an average of nine days to get an MRI taken. It takes another seven or more days to get the results. Thats 16 wonderful days of pure aggravation and not knowing what the heck is wrong with oneself. IP: Logged |
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Rosanne unregistered |
posted 07-17-2001 04:27 PM
Rocco, I can relate to what you said about having to wait 16 days for an MRI. When the MD found a lump on my breast, he told me it was likely cancerous but get the mammogram and then schedule surgery---well I had to wait 2 weeks to get an appointment for mammogram!!! Talk about anxiety! Fortunately all turned out well. The point is that it is very difficult and extremely frustrating trying to manuver in the medical system regardless of what problem you have. We all need to be our own advocates. I am advocating for my daughter who is 13 and hearing impaired. She was normal hearing until 9 and then gradually started losing. Now it is really severe to profound and she has great difficulty socializing. Coping with hearing loss as an adult is bad enough but when you are 13 it is traumatic. I wish I knew the right words or strategies to help her. I have given her an e-mail account and she has a TTY but hearing friends seem to not bother to call. She misses not being included. This year, we will give an inservice to the school(she will be the only deaf kid-she disliked the special hearing impaired school and we brought her back to our home district). Does anyone on this list have other ideas on coping with hearing loss for a 13 year old? Thanks Rosanne IP: Logged |
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David Melbourne Member |
posted 07-18-2001 12:59 AM
Just Thank God you dont Live in canada You could wait up to a year for Cancer treatements IP: Logged |
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ROCCO unregistered |
posted 07-18-2001 10:44 AM
Rosanne: Coping with hearing loss is extremely difficult. For a child, I can only imagine the confusion that one must go through. Suggestion: This helps me, and may be able to help you. Practice lip reading. Not only does it keep your mind constantly occupied with self-training, learning initiatives, it greatly helps your level of communication with others. Put the TV on and mute it...practice reading lips.believe me..this works and can help. Lip-reading is real and it works...practice it. David: Canada is that bad! It's a shame ! IP: Logged |
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Sheena Member |
posted 07-18-2001 01:06 PM
Hi there ... I just found this site and the discussions that have been going on. I wanted to tell the story of my hearing loss and see if anyone has any advice. Winter of 2000 I noticed tinnitus in my left ear and had a hearing test done by a hearing aid clinic. Once they saw my hearing loss they sent me to my GP who sent me to an ENT specialist. He did a series of tests to rule out an Acoustic Neuroma and then told me I had tinnitus and that I’d have to live with it. This took until the Fall of 2000. (I’m writing from Canada and everything takes longer) During the Winter of 2001 I noticed the ringing getting worse and sought a second opinion. After another hearing test I was told I had more hearing loss and was sent for an MRI. (I was told it would take up to 6 months for the MRI but was put in an urgent status and got in in a month and a half) May 1, 2001 I had the MRI and was told it was fine but the ENT told me that if I noticed any more hearing problems to come in for another hearing test. She basically told me I had had a viral infection that caused the hearing loss and the tinnitus. They also scheduled me for a hearing aid clinic hoping I could find something to mask the tinnitus. That was today and I felt that I had had more hearing loss so they did another test and sure enough more hearing loss. So we put off the hearing aid evaluation and scheduled another hearing test in four weeks possibly another MRI and possibly another specialist. Does this sound familiar to any of you? Any advice on what I should be asking and doing? [This message has been edited by Sheena (edited 07-30-2001).] IP: Logged |
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ROCCO unregistered |
posted 07-19-2001 04:33 PM
Sheena : Viral infection is the typical response when they have no real answer (see one of my recent posts). For starters, see a 2nd ENT and get a second opinion. Ask the doctor : *Measure the hearing loss (see another Audiologist)and ascertain the charts/readouts of the tests. *Ask about medication i.e. Prednisone or Meclizine..but get the side affects from your doctor. *A second MRI , in my opinion, won't discover anything that the 1st one didn't. *Ask your doctor about A.Neuroma, Meniere's disease, sudden hearing loss, vertigo. *Tinnitus usually means hearing loss, inner ear damage. Basically, the cells are mis-firing causing that rotten noise you constantly hear running through your head. *Get a 3rd opinion if your not satisfied. *I think most doctors haven't a clue...but you may get lucky and find the right one. Like hitting lotto with a quick-pick...you never know. Good luck..... IP: Logged |
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David Melbourne Member |
posted 07-20-2001 05:18 AM
One of the things i have noticed that helped me when i do get ringing in my ears (thank God its Not all to often) is if i do things that help relax me for example a nice hot bath or sometimes a wamr washrag over my ears its possible just the soothing effects take some of the stress related away . i doubt it has any real value in getting rid of the ringing just that my body is more relaxed IP: Logged |
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